Lung Cancer Resources

Image from Lungevity

Here are some resources for Lung Cancer Patients.

I highly recommend checking out the online support groups. I don't know how well most are run, but  I do know I have learned a tremendous amount from the ALK+ group.

If you have other suggestions for these lists, please let me know in the comments section.

Support Groups for Specific Types of Lung Cancer

ALK Positive - https://www.alkpositive.org (ALK positive NSCLC) - ALK patients worldwide

ALK UK  - https://www.facebook.com/groups/ALKPositiveUK/  (ALK+ for those in the U.K.)

ROS1ders - http://ros1cancer.com  (ROS1 NSCLC)

EGFR Resisters - https://egfrcancer.org  (EGFR and cancer resistant to EGFR TKIs)

EXON 20 - http://exon20group.org  (EGFR and HER2 Exon 20 insertions)

RET Renegades - retrenegades@gmail.com

Lung Cancer Resources

• Lungevity - https://lungevity.org
• Bonnie J. Addario Lung Cancer Foundation - https://www.lungcancerfoundation.org/
• Chris Draft Family Foundation - http://www.chrisdraftfamilyfoundation.org
• Lung Cancer Research Foundation - https://www.lungcancerresearchfoundation.org
• Articles and blog posts: https://lungcancer.net
• Lung Cancer Foundation of America - https://lcfamerica.org
• Free to Breathe - http://www.freetobreathe.org
• About.com - About.com: Lung Cancer - info on managing lung cancer symptoms
• ASCO - American Society of Clinical Oncology - Research organization
• Clinical Trials - Cancer Clinical Trials Blog - Information on Clinical Trials
• CANCER  GRACE - Global Resource for Advancing Cancer Education - Education Resources
• Lung Cancer Alliance - Lung Cancer Alliance - Information and Support
• Cure Today magazine - Cure Today
• Information on Drug Interactions - https://www.drugs.com/drug_interactions.html

Lung Cancer Blogs 

ALK+ Cancer

• Life and Breath: Outliving Lung Cancer- https://outlivinglungcancer.com/ -Linnea Olsen, ALK
• Young Lungs - https://younglungsblogdotcom.wordpress.com/   - Kathy and Jeff Clark, ALK
• Johnny's Cancer Blog - https://johnpender.wordpress.com/  - John Pender, ALK
• Aquarius vs. Cancer - https://aquariusvscancer.com/- Kim Wieneke, ALK
• These Are My Scars - https://thesearemyscars.com/ - Anne Marie, ALK

ROS1 Cancer Blogs

• Gray Connections - https://grayconnections.net/  - Janet Freeman-Daily, ROS1
• Every Breath I Take - https://lisa.ericgoldman.org/ - Lisa Goldman, ROS1
• Faith, Family, and Friends - https://lysabuonanno.wordpress.com/ - Lysa Buonanno ROS1
• The Dude is the Dad - http://thedudeisthedad.blogspot.com/ - Jim Brown, ROS1
• A Lil Lytnin' Strikes Lung Cancer - http://lil-lytnin.blogspot.com/ - Tori Tomalia, ROS1
• Thriving with Lung Cancer - https://thrivingwithlungcancer.com/ - Beth Stroud, ROS1
• Cancer...An Unexpected Journey - https://lunaoblog.blogspot.com/ - Luna Okada, ROS1

Other Cancer Blogs

• Time Goes By: A Blog on Aging, End of Life, and Pancreatic Cancer - https://www.timegoesby.net/weblog/
• Someday is Now: Living with Stage 4 Lung Cancer - https://melcro53.wordpress.com/ - RET
• Sci Fi Knitter - http://scifiknitter.blogspot.com/ - Anita Figueras, EGFR