February 2017 - Diagnosis with Non Small Cell Lung Cancer (NSCLC) Adenocarcinoma
FISH test confirms ALK Positive, no PDL-1
March 2017 - Crizotinib (trade name, Xalkori)
Whole Brain Radiation (WBR) - 10 days
Dexamethasone (steroids) for brain swelling/edema
March 22, 2017 - 911 Call; Emergency Room/Intensive Care/Hospital for 1 week
Collapsed Lung/Chest Tube; Atrial fibrillation; Malnutrition;
Severe Steroid-Induced Diabetes, temporarily placed on insulin;
Septic Shock; HONK Syndrome (Hyperosmolar Non-Ketotic coma);
Hyperkalemia; Hyponatremia; Dehydration; Pleural Effusion;
Placed on Blood Thinners to prevent blood clots
April 2017 - Rehabilitation Center/Physical Therapy/Occupational Therapy to regain strength
Slow tapering off of Dexamethasone; discontinued insulin as blood sugar normalized
3 weeks PT/OT and then home; walker/wheelchair due to weakness and dizziness
Thoracentesis 5x over March, April, May, and June
Development of Lipo-Lymphedema
June 2017 - Placement of PleurX Catheter for daily drainage of pleural effusion
Summer/Fall 2017 - Manual Lymph Drainage and Compression for Lipo-lymphedema
Physical Therapy, rebuilding strength, restoring nutritional reserves
Palliative Care home visits
January 2018 - Fainting Spell or Seizure (unseen so we don't know which)
February/March 2018 - Switched to Alectinib (Alecsensa) for presumed brain progression
March 2018 - Worsening of Lipo-lymphedema in legs; legs cracked and weeping fluids
Development of cellulitis (skin infection on leg), sinus infection
Antibiotics (doxycycline) for cellulitis and sinus infection
September 2018 - Removal of PleurX Catheter after pleural effusion finally resolves
Ongoing - continuing treatment with Alectinib, blood thinners, etc.
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